The AFDM Report
by Shannon Barringer, MS, CGC
Program Manager, Arkansas Reproductive Genetics Program / ANGELS
The Arkansas Fetal Diagnosis and Management Program enrolled 70 new families into our program during the past three months. These families are carrying babies with birth defects or genetic diseases requiring specialized case management and intervention. With the recent increase in numbers of babies with gastroschisis noted last Fall, the program has developed a patientfriendly fact sheet for this diagnosis. In addition, we would like to highlight examples of AFDM’s care of some of our families this Winter:
- We coordinated in utero laser surgery with the Texas Fetal Center to repair abnormal blood flow in the placenta of twins affected with Twin-Twin Transfusion Syndrome.
- Three babies have been diagnosed with Congenital Diaphragmatic Hernia. This life-threatening condition requires consultations with pediatric surgeons, neonatologists, and pediatric cardiologists before delivery. Fetal MRIs are also needed for these babies to help determine their lung potentials after birth.
- One of our families, whose son died from complications of Spina Bifida and then became an organ donor, was honored at the 2014 Rose Bowl Parade on the ”Donate Life” float. An image of him, created of flowers and other natural materials, was prominent on the float.